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Billy Ellsworth tosses a football to Max Leclaire to demonstrate the efficacy of Sarepta's experimental drug, eteplirsen, to treat Duchenne Muscular Dystrophy, on Monday, April 25, 2016. Many researchers and Duchenne patients spoke during hearings over conflicting interpretations of findings from Sarepta's clinical trial of the drug to treat Duchenne muscular dystrophy. Duchenne muscular dystrophy is a rare disease that strikes one in 3500 boys who typically don't survive into their 30's. Sarepta's drug is meant to treat a specific gene mutation. John Boal Photography

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JWB 042516_26Sarepta-318-final.JPG
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John Boal
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Billy Ellsworth tosses a football to Max Leclaire to demonstrate the efficacy of Sarepta's experimental drug, eteplirsen, to treat Duchenne Muscular Dystrophy, on Monday, April 25, 2016.   Many researchers and Duchenne patients spoke during hearings over conflicting interpretations of findings from Sarepta's clinical trial of the drug to treat Duchenne muscular dystrophy.  Duchenne muscular dystrophy is a rare disease that strikes one in 3500 boys who typically don't survive into their 30's.  Sarepta's drug is meant to treat a specific gene mutation. John Boal Photography