Jen McNary, kisses her son, Austin Leclaire, center, after he spoke during hearings over conflicting interpretations of findings from Sarepta's clinical trial of an experimental drug to treat Duchenne muscular dystrophy. Joining Leclaire was Jake Wesley. Duchenne muscular dystrophy is a rare disease that strikes one in 3500 boys who typically don't survive into their 30's. Sarepta's drug is meant to treat a specific gene mutation. John Boal Photography
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